Getting close

Licking his bug


Hey everyone. There is really not much news. Jackson had an "episode" on Saturday morning where he dropped his saturations and his heart rate even dropped a little. His oxygen had come out of his nose and then he started crying and just didn't have the reserve to cry as hard as he did. Once he calmed down everything went back to normal in a short time. We are still planning on coming home soon. We are doing things that we have to do in order to go home. Adam and I do his feedings while we are there and bathe him. Adam learned how to put down and N-G tube (feeding tube) today. I did it on Saturday so we are both checked off on that. We are going to take infant CPR next week. He has to sit in his car seat everyday, we are trying to work up to 4 hours. He did a little over 2 hours today. Jackson still can not take food by mouth, the surgeons say they can not place the feeding tube directly into is stomach so we are going to keep the N-G tube. The doctors want to send us home by ambulance but insurance says they won't pay for it, so the doctor is going to write a special note on Monday. The doctors are going to check his airway on Monday just to make sure his episode on Saturday was not because his airway clamped down. He is getting really interactive. He makes sweet little noises, and loves to play with his toys. He loves to hit things. He also likes to lick everything. Please continue to pray for us, that Jackson continues to do good and can be discharged soon, and all other CDH families.
Love
Adam and Kimberly

P.S. The Disney shirt came from our friend Allyson (night nurse), she went to Disney World a couple of weeks ago and bought that outfit for Jackson.
















He was hitting this toy so much, Adam said it looked like he was playing tetherball.