Monday, April 17, 2006

Six Weeks Old; Easter and Ventilator trials

Hi everyone. Sunday was a big day for us. It was Jackson's six week birthday, Easter and he had his first pressure only vent trial. The ventilator trial went great. They had him on pressure support only for an hour and he did wonderful he pretty much slept through it, his oxygen saturation stayed 97%-99%. Everyone was very pleased. They did one again today and he did ok, not as good as yesterday but very well. He was on pressure only for two hours today. There were a couple times during that 2 hours that he got agitated and dropped his saturation a little but he would come right back up. He pretty much stayed between 85%-95%, and his gas that was done afterward was good. So we will do this again tomorrow, and so on and so on, until he can do it for 24 hours. We did get a little bad news today. Jackson was diagnosed with a dilated right kidney while he was still in utero. They have been monitoring this frequently and until today it was just little dilated. For some reason today's sonogram showed a very large dilation. The urology doctor said he will definitely need another surgery. We are unsure at this point what kind. It could be a simple obstruction, or it could be a nonfunctioning kidney. All his lab work related to kidney function is ok. There are a few test to be done to determine the amount of kidney function his right kidney has. Once those test are done I will be sure to update everyone. I know that is very broad, and really doesn't explain anything but that is all I know right now, I will let everyone know when I know more. One other piece of small news. We got moved out of our private room. We are out in the pod with all the other babies. Although we will miss our privacy this also means Jackson is doing good enough to be moved to a less critical bed space. Please continue to pray for us, I know those prayers have gotten us this far.

Please say a special prayer for Baby Drew, Jana (mom), Raymond (dad), and Elizabeth(sister) as they deal with their unimaginable loss. Please pray for everyone in this angel's life, and all other CDH families.

1 Comments:

Blogger Jana said...

I am truly happy for Jackson. What a figher! I will pray that he continues to do well and that you have some answers regarding his kidney soon. You all stay strong, it's difficult, I know but you've been doing great.

Love,
Jana

8:22 PM  

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