Continued ventilator trials

Hi everyone. Jackson got up to four hours with his vent trials. After a four hour trial on Saturday that went great, he got really mad. About ten minutes after the ventilator was turned back to it's normal settings back he flipped out. He turned bright red made his "cry face" and dropped his sats. His sats stayed in the low 80's for about 3 hours, then he was in the upper 80's to low 90's for a while. He dropped again a few hours later and did the same thing down for a couple of hours then back up but still lower then we want. Sunday morning he went down again but just for a little bit, since Sunday afternoon he has pretty much been in the 90's. He did really good Sunday night through Monday. They did not do a vent trial on Monday because he had to get a Pic line placed and was sedated. They started him back on vent trials today. He did two hours today and did great!!!!!!!!!! Hopefully we will continue on the vent trials and we will be off this ventilator soon. I guess that's all for us today.

special prayer request for baby Gabriel. Gabriel is another CDH baby here at Texas Children's he was born in January. They have been unable to correct his pulmonary hypertension and has been waiting on a lung transplant. He is getting his lung transplant tonight at 8:30pm. Please keep this family, as well as the donor's family in your prayers.

Love
Kimberly and Adam