GOING HOME!!!!!!!!!!!!!

Hi guys. We have an official discharge date. We are due to be discharged Monday afternoon. My mom came up and my dad is on his way to help us move. It is amazing what you can acquire in 5 months. We took CPR with grandma yesterday since she will be staying at home with us for a while. We are rooming in tomorrow, and should be discharged Monday. I will not be able to get to a computer for a while after this post. Jackson is doing so amazing. He coos and plays all the time. He is trying to roll over, and can almost hold up his head. He scoots around in his crib and can go almost in a full circle. We have all of our at home supplies for the trip and ready at home. A special thank you to Elizabeth for waiting at our house for delivery. Their are so many people to thank I will write that post when we get home. We truly appreciate everything everyone has done for us, and everyone's concern for us. We know and understand that many of you want to come visit us. We are asking that you please give us a week or so to adjust to being at home with Jackson, getting used to nap and feeding times etc. We also ask that you call before visiting to make sure we will be available, this kid has more doctor appointments then you can imagine. Our last request is that you only visit when you are healthy. Jackson is very fragile, especially his lungs. There is a virus that he especially susceptible to it is called RSV. Almost everyone has had it and will get it again. It presents itself as a common cold in non compromised infants. However in these compromised infants such as chronic lung problems, premies etc it can be fatal. Because of this we ask that you not visit if you or anyone in your house has had cold symptoms, or a fever in the past 48 hours. I know this may seem extreme but believe me it is necessary. RSV season is in the fall and winter, from about September to April. During these months Jackson will get a shot every month to help prevent RSV. Our pulmonologist said we should not take Jackson out of the house except for doctor appointments until RSV season is over. We are so excited to be going home, and know you all are excited for us. Thank you all so much for the many prayers, thoughts, everything else, and lastly for respecting these wishes.
We met an amazing family yesterday. They are just starting their journey with CDH. Their son Finn is 4 days old. We met them yesterday while they were waiting for the surgeons to finish putting him on ECMO. They had heard about Jackson and his case from the surgeons, and nurses. Everyone was so glad to meet. They even got to go into our room and meet Jackson, so they could see the amazing miracles that can happen. These are some of the nicest people I have ever met. This family really needs prayers right now. Their son has left sided CDH and possible a narrow aorta. His name is Finn Patrick please pray for him and his amazing family.

Love,
Kimberly and Adam