More rollercoaster riding

Hi everyone. We told Jackson we were done with the rollercoaster ride and only wanted straight and steady, he had other ideas. He has begun to require more support from his ventilator. On May 5th his oxygen saturation dropped into the 80's and he was not able to bring it back up, so they increased the amount of oxygen the vent was giving him from 32 to 35%. He did the same thing the next night and they had to go from 35 up to 40%. They stopped pressure support trials at this time, we never got above four hours though. The next night May 7th he had another seizure. It was only one, it lasted less then a minute and his oxygen saturation came back up quickly. Because of this they had to do a work up to see if he has an infection. So far the preliminary labs look negative for infection. We have to wait 48 hours for definite results, so he is on antibiotics in the meantime. Then this morning his oxygen saturation was staying in the upper 80's so they increased his ventilator settings again. They increased the amount of pressure he gets with each breath (PIP) and the amount of pressure left in his lungs at the end of each breath (PEEP) and kept the oxygen % the same. There is talk of getting him a bigger vent tube. Right now there is a large "air leak". Meaning air is escaping around the ventilator tube so the amount of pressure the ventilator is set to give him is not actually the amount he is getting. This has pros and cons so right now it is just being discussed. Well I guess that's all for now. Please continue to pray for us and all the other CDH families out there.

Love Adam and Kimberly

P.S. Baby Sofia is doing AMAZING!! Baby Audrey is holding her own and fighting like a CHAMP!