Steps in the right direction

Hello everyone. Jackson is making strides in the right direction. The doctor did another BNP (blood work that tells how hard the heart is working) it is now down to 350!!! They also did another echocardiogram. They did not take the same measurements they took last time. The last echo rated his pulmonary hypertension as high end of mild, the most recent one was rated as trivial. All the tests are saying Jackson is getting over the pulmonary hypertenstion. They are now trying to wean is oxygen back down. The highest it got was 58%. Yesterday they weaned him to 57 then today down to 55%. Although these are small steps they are in the right direction and we have to go slow to prevent him from developing pulmonary hypertension again. One of our favorite nurses, Alyson, bought him some outfits and they are letting him wear normal clothes now. She also bought him a beautiful blanket, he loves them. Adam bought him a mirror that makes sounds and has lights, he loves it so much, he likes to look at himself. The goal now is no more set backs, wean the oxygen, and start pressure support trials again. This will probably take a couple of weeks, at least. I have recently gotten to hold him with his tummy on my chest, it is the best! Well I guess that's about all for now. Thanks for reading and please continue to pray for us and all the other CDH babies and families.

Sofia is doing great!!! She is extubated and moved down to a special care nursery.
Audrey is holding her own and fighting hard.