Sunday, December 31, 2006

HAPPY NEW YEAR!!








Hi everyone, sorry it has been so long since I posted. My original idea was once he was stable I was going to post every month around his birthday, that obviously has not been happening. First let me say that everyone is doing wonderful. We had a great holiday, Jackson seemed to really enjoy Christmas. My mom was in town for a couple of weeks and that was wonderful. The rest of my family (my dad, sister and her boyfriend) were in town for a couple of days around Christmas. Jackson even got a personal concert from Catherine's boyfriend Seth Walker it was amazing. My granddad came down from Missouri this Christmas. It was so great because we had not seen him in a long time and it was really important to me that Jackson meet his great-granddad. He stayed at my aunt's house which is about an hour away, that combined with my work I did not get to see him that much. I am so happy I got to see him some though.
Jackson Statistics:
Age: Almost 10 months old (has been home as long as we was in the NICU as of this week)
Weight: 19LBS (17th percentile)
Height: 30in (85 percentile)
Teeth: 6
He is doing very well. He is still a little behind but seems to keep moving forward. He still will not eat. The most we can get him to actually eat is about four bites of baby food at a time, then he just gets mad and screams. The good thing is he really seems to enjoy it, he also tries to take whatever Adam and I are eating so we let him try that. I let him chew on an apple slice (in mesh bag thing) the other day and he seemed to do alright with that but was not too interested. Because he is still not eating we are still feeding him into his g-button every 3 hours. We are slowly upping the amount of his feeds. He is still eating 24cal/oz formula (normal is 20cal/oz). The plan is to up the amount of his feeds slowly then when we get to a certain amount then decrease him to 22cal/ oz then 20cal/oz then space his feeds out. He has started to reflux a lot lately so we are going very very slow.
He is still not sitting up completely on his own yet, he will sit up as long as someone is behind him or he is in his boppy. He can also sit up fine when he is crying but as soon as he realizes he is doing it he falls over. He rolls all over the place. If he sees something he wants across the room he just rolls right to it. He is also starting to do the army crawl. He will only do this for a few inches before he gets tired and rolls. His therapists are all very impressed by him. He loves his voice. He squeals all the time especially when his daddy kisses his neck and cheek. He says BA all the time it is so sweet. He also started waving a couple of days ago, I am so proud of him.
We had a neurology appointment in December and they said he looks great. They even said we did not have to get a follow MRI unless we wanted to. We decided to get an MRI just to check on the 2 previous small bleeds. We will have our MRI on the 2nd, I will try to update as soon as I know results. All other things are about status quo. He is a happy, growing, playful, silly 10 month old.
Thank you all for reading, I will try to update every month from here on out.
Love
Kimberly, Adam and Jackson
HAPPY HOLIDAYS AND HAPPY NEW YEAR

P.S. If anyone at Texas Children's reads this please tell everyone we say hello and miss them, we think about you guys all the time.
Congratulations to Melanie, Carrie and Rosalind