Update

Sorry for not updating in a while. On Thursday May 18th the doctors weaned Jackson down to 53% oxygen, however the next day Jackson appeared to be having some problems keeping his saturations at sufficient levels, as he was only saturating 88-92 on 53% oxygen, so the doctors increased his oxygen all the way up to 100% and slowly weaned it back down to 55% later that same day. X-rays showed that Jackson had some fluid build up in the lower lobe of his right lung. The treatment for this is CPT, which they did for 2 days. Jackson has been on 55% oxygen since but is always satting 98-100. Jackson's follow up echocardiogram on Monday 5/22 showed continued improvement, while his BNP level was all the way down to 180, which is very good. Jackson has another echocardiogram scheduled for Friday 5/26 and if it has improved yet again then the doctors are planning to wean his oxygen from 55% to 54%. That's not a typo, just 1%. The plan right now is for Jackson to be moved on either Monday or Tuesday of next week over to D pod, which is the area for chronic patients. Over the next month, if the doctors aren't able to wean Jackson down sufficiently from his current vent settings then he will be given a tracheostomy. D pod is for ventilator dependent babies and specializes in weaning them off the vent. Kimberly and I still think Jackson can be weaned off the vent without having to get a tracheostomy. Jackson only has 7 days left of his yeast medication (Amphotericin B), yeah!!!!. He has been on the medication for 5 weeks now and infectious disease doctors recommended that 6 weeks would be enough. Follow up renal sonograms have shown basically no changes, which is good, and the urology doctors continue to follow Jackson's progress. We are posting pictures of Jackson in outfits from both grandmas. The blue stripe outfit is from grandma Cheryl and the gray baseball outfit is from grandma she-she. We also included a picture of him playing with his rattle.

Love,
Adam and Kimberly