We'll take the good with the bad

Hi. Ok lets start with the good.

JACKSON IS OFF OXYGEN!!!!!!!!!!!

We went to the pulmonologist's office on the 27th. We told him how well Jackson had been since the last surgery and he wanted to see how he would do off oxygen. We turned it off and waited.....waited......waited.....and kept waiting, his oxygen saturation never dropped below 98%. After about 15-20 minutes with no drop he decided Jackson could go off oxygen. He has been without oxygen since then and is doing wonderfully. He drops his saturation a little at night but not too bad. It is so much fun to kiss all over his sweet little cheeks. His cheeks are very dry and red, but I think they will heal up pretty fast. We got to take him on his first stroller ride. I am not sure what he thought but Adam and I had fun.

Ok here is the bad (turns out to be not all that bad, just a bad day)
Jackson's G-tube was held in with one stitch, the stitch came out on the evening of the 27th, we called the pediatrician's office and they said to wait until morning and call the surgeon, it would be fine through the night. So I called the surgeon on the morning of the 28th. They said because we had not been to their office yet they could not see us until October 12th but the tube should be fine. They did say if it comes out go to the E.R. SO about an hour later it fell out. We got to the E.R. at Children's Dallas at approx. 2pm. The triage nurse put a Foley catheter tube in the hole to keep it open until the doctor could put a g-tube back. When the surgeon saw the Foley he decided that if it was in the right place we would just keep that in instead of pulling it out and putting a new tube into unhealed tissue. So we went to radiology, did a barium study and found out it was in the right place. Another surgeon kept the Foley in place with a stitch and we went home. This all does not sound so bad, the bad part was that to do these things we were in the E.R. 9 hours. Once we finally got home Jackson was starving so we started to feed him only to find out the Foley tube does not fit any of our feeding syringes. I was so mad I was in tears. We had wasted the whole 9 hours. Waited all day, put Jackson through all of this, and not letting him eat only to find out we had accomplished nothing. We found a way to rig it to get through last night's feeds. I did however call the E.R. and let them know that Foley tubes do not work for feeding. The E.R. suggested we call the surgeon's office in the morning and see if they could see us and fix it in their office. So to make an already long story a little shorter. Adam and Jackson spent all day today in the surgeon's office, and Jackson is now the proud owner of a brand new Mic-Key button. One good thing that came from all of this was we really like our surgeon that we saw today, and Jackson got his button which is much easier to deal with then a tube. So see it really was not all that bad. I guess that is a long enough post for now. Thanks for keeping up with us.
A special thanks to our friend Allyson (Houston) who got to listen to me vent about this whole ordeal last night, thanks for listening.

Love,
Adam, Jackson, and Kimberly