We Moved

Hi everyone, there is really no news to speak of. We moved to D pod on Tuesday and met some of our new caretakers. We met the nurse practitioners which I am really excited about, we are also adding a cardiologist and a pulmonologist to the team we have not met them yet though. Dr Speer will be our attending this month, and Dr. Lawrence is the fellow. This is wonderful we love Dr Lawrence and he has even said that Jackson has been one of his favorite patients, ever. Some of the doctors think that Jackson needs a trach, but are unsure when to do it because feeding will be a bigger issue if he gets it, this is because he would need a tube directly into his stomach (G-tube). Babies with a trach can not be fed through their mouths and the tube he has now goes from his nose into his small intestine. This is not good for long term, and if he gets a trach he will probably have it for about a year. This tube would have to go directly into his stomach, but they are concerned about reflux so he would also need a surgery to fix that (fundoplication). Because of all of this they are a little more hesitant to do a trach, which makes us happy. I think the plan is to see what we can accomplish in the next 4 weeks. We are basically waiting for his lungs to grow and get strong. So we are not expecting any significant vent changes for about 4 weeks. We will however continue to wean his medications. He is almost totally off of morphine. Once the morphine his gone we will work on his ativan. Ok so for not much news that was a really long post.
We received a comment from a couple in Turkey, they are expecting a little boy with a left CDH in July. Their names are Aytekin and Emel and their baby will be Mert. Please add this family to your prayer list.
Sofia and Audrey are both doing great. This just reinforces the wimpy white boy theory. Go Girls.
Will post pics next time.

Love
Adam and Kimberly